Dear Brooklyn Borough President Adams,

We were appalled to hear you call the closing of Willowbrook State School, the Staten Island site of numerous abuses of people with developmental disabilities, a “mistake” on MSNBC’s Morning Joe last Tuesday, while downplaying the nature of the atrocities committed there. These comments suggest an incomplete understanding of the depth of institutional failure at Willowbrook, as well as the harm that disabled people often face in facilities meant to care for them. 

It is imperative that we as a community — both citizens and elected officials — do not forget this history, lest we repeat these mistakes. Remarking that just “a few employees harmed those who were patients at Willowbrook” is a gross understatement that erases the lasting trauma of the thousands of Willowbrook patients and ignores the abuse that many of these same patients still receive today in smaller institutions. It is additionally upsetting that you would conflate the experiences of developmentally disabled people and people with mental illnesses, which ultimately marginalizes both communities and does a disservice to their unique lived experiences.

What happened at Willowbrook was a wake-up call for all of us about how disabled people are treated by the medical industrial complex, and New York City requires a leader who understands this. We encourage you to revisit some of the original coverage surrounding the Willowbrook exposé and listen to those who experienced life there in order to better understand the reality of Willowbrook. 

We hope that you can use this as an opportunity to educate yourself and reflect on the harmful nature of your comments. The point that you appeared to be trying to make — that disabled people are woefully under-served by the state despite an abundance of resources — remains a salient one. We look forward to working with the next mayor in advancing opportunities for, while listening directly to, disabled people across New York City. 

Sincerely,
The staff of Extreme Kids & Crew

Posted
AuthorAlex Bazeley

We are appalled at this week’s ruling by the D.C. Circuit Court of Appeals which struck down a regulation that would have banned the use of the graduated electronic decelerator, a skin shock “treatment” that is used to torture people with disabilities. This device — which has drawn criticism from human rights groups, disability advocates, legislators, and more — is used by the Judge Rotenberg Center in Massachusetts on children and adults with developmental disabilities and behavioral disorders, the only place in the country that still does so.

We stand with The Autistic Self Advocacy Network and the broader disability community in denouncing this ruling, and believe it is imperative that we continue to fight for a future where human rights are universal and not dependent on one’s identity. While we find this ruling despicable, we are heartened by the many advocates who continue to fight for justice in these spaces, and we will continue to be vocal in our solidarity. We urge you to do the same. None of us are free until we're all free.

Read The Autistic Self Advocacy Network’s full statement.

Posted
AuthorAlex Bazeley

Students will not report to school buildings for instruction until Monday April 20, 2020 or longer if necessary. Source

Extreme Kids programs will follow this time frame as well for in-school programs: open play, Girls Crew, Teens Crew, Powerful Parents, and after school.

Posted
AuthorGuest User
CategoriesCurrent Events

*Translated links are below.

Dear Extreme Kids & Crew community,

We hope this finds you and your crew well amidst the growing concern about COVID-19. Like everyone, we are carefully monitoring the situation and working to make the best decisions possible for the health and welfare of everyone who enters Extreme Kids spaces.

The safety and health of our member families, staff, and volunteers is our top priority, and thus, to err on the side of caution we have made the tough decision to suspend all weekend programming and events through March 31. After-school is closed through March 20th, at which point, post deep-cleaning, we will reassess. This was not an easy nor desirable decision, but ultimately, we want to ensure we are doing our part to avoid the possible spread of the virus. We will provide continual updates on our website and social media feeds regarding how we will proceed in the coming weeks, and will be available during work hours should you need to reach us.

This month Extreme Kids will:

  • Professionally sanitize our spaces

  • Update you regularly on our plans

  • Brainstorm alternative program offerings. Virtual playdates and support groups?!

  • Provide some much-needed love, and levity, along the way

It is reasonable to feel anxious during this time of unknowns. Please take care of yourself, inside and out, and take care of each other. No one knows what to do exactly, but we will get through this together! 

Ways to connect with Extreme Kids and other caregivers/parents:

  • The Extreme Kids email listserv, as always, can be used in the following ways:

    • Crowdsource information about: babysitting, schools, doctors, etc.

    • Organize playdates

    • Reach out to other caregivers (or us) for support

    • Don’t have access to the listserv? Request access by emailing Alex alex@extremekidsandcrew.org

  • Social media:

    • Facebook: @extremekidsandcrew

    • Twitter: @edextremekids

    • Instagram: @extreme_kids_and_crew

Please reach out, stay in contact with us and your community. Hopefully we are being overly cautious. I recognize the impact these decisions have on all of us and do not take them lightly. Stay strong and connected, my friends. And lastly, Happy Birthday Felix!

Sincerely,

Caitlin M. Cassaro, Executive Director and The Crew

Translated versions of this letter will be posted as they become available. Please download and share as you’d like:
SPANISH | CHINESE | POLISH

Posted
AuthorGuest User

Dear Extreme Kids & Crew community, 

There are now multiple confirmed cases of coronavirus, or COVID-19, in New York City. While the risk remains low, we are aware that many of our member families may be more vulnerable to infection. We have arranged to have a cleaning service come into the play spaces more frequently, and staff will use alcohol-based cleaning products to disinfect toys, equipment and furniture daily. Extreme Kids & Crew’s play spaces remain open, and the events will run as scheduled until informed otherwise. Most of our programming takes place within public schools, and thus we will follow the Department of Education's lead regarding closures.

While we remain open, please do not participate in Extreme Kids programming if:

  • you or a family member is sick.

  • you recently returned to New York from China, Iran, South Korea, Italy or Japan within the last 14 days.

  • you have been in close contact with someone who has travelled to a high-risk location.

Your safety is of the utmost importance to us, and we are happy to share the following information from the Health Department:

To prevent infection, the best advice is still to get a flu shot, wash your hands with soap and water, use an alcohol-based sanitizer, and cover your nose and mouth when sneezing or coughing. What we know about the coronavirus so far is that it behaves like the flu, which means the best prevention is the same advice given during flu season.

Visit NYC’s Coronavirus website for real-time updates in multiple languages. 

You can also text COVID to 692-692 to get real-time updates.

We suggest visiting the NYC Department of Education’s website for information on public school updates. And this guide from the New York Times about talking to kids about coronavirus is a great resource if you're struggling to keep your own anxiety in check.

During this time of unknowns and potential fear, please treat each other with respect and kindness. We are all in this together.

We will keep you posted on further developments, and we hope you stay safe and healthy.

With love and compassion,

Caitlin M. Cassaro, Executive Director, and The Crew

Transcript: What You Need to Know about Coronavirus (in ASL) Coronaviruses are a family of viruses that cause mild illnesses like a cold, to more serious ill...
Posted
AuthorGuest User